Help us raise even more this year at the Dance Marathon 2/24!


Saturday, October 28, 2017 - 12:00pm
Thank you all so much for participating in our Spooky Duke Race 2017!   The Race results have...
Tuesday, August 29, 2017 - 2:54pm
Stories from some of our local families will be posted up periodically.  To keep up with them...
Monday, February 27, 2017 - 10:13pm
Thank you all to the participants and families that joined us at AppState's Dance Marathon 2017....
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“Never give up” My name is David and I am 31.  I have cerebral palsy, I’m nonverbal, I have tetralogy of fallot (heart defect) and I have had 2 major heart surgeries and will need another one in the future. I have also had major orthopedic surgery.  I am able to speak for the first time because I recently received a communication system!  Never give up!  I also love my dogs, playing with my brother and watching Scooby Doo and Sponge Bob.  I love everyone and living life...
“Why fit in when you were born to stand out!”  Hi!  My name is Erin Lang and, though I can’t stand on my own, I LOVE to stand out.  I am 17 years old and was born with cerebral palsy and later diagnosed with autism.  I LOVE baby dolls, reading books, playing Able Rec t-ball, horseback riding and just being around other people!  I want to go to college someday and would love to work with children or be a bus monitor when I grow up.  I love to dress up and can’t wait...
“Life is beautiful; enjoy the journey” My name is Joshua and I am 25.  I was born prematurely and I was airlifted to Brenner’s hospital at 3 months old.  I only weighed 3 pounds!  I have cerebral palsy, am non-verbal, and use a wheelchair to be mobile but I have not let that stop me from enjoying life.   I love talking with my eye- gaze communication device!  I love going to music concerts, Harley Davidson motorcycles, and the movie, Rio. While I cannot run, I love...
Run for me! Luke is our sweet, fun, and loving 3-year-old son who enjoys being in the company of others, especially his family and familiar friends. Luke loves reading board books, hiking in a stroller, and swinging at the local park. He also enjoys playing musical instruments and the smile on his face after an accomplishment is priceless! Luke was born at 34 weeks after an emergency C-section. He was not breathing for 6 minutes and was flown by medical helicopter to the NICU at Wake Forest...
Run for Jessie My name is Jessie, I am 25 years old and I live in Wilkes County. I have GM-1 Gangliosidosis Type II…it is a very rare genetic disorder that slowly is shutting my entire body down.  When I was about 5 years old, my parents noticed my foot was turning inward when I would run and play. I began to stutter when I talked.  It took 13 more years before the doctors could tell my parents what was wrong. When they did, we were informed that there is no treatment and no cure and...
“Laugh and the world laughs with you” My name is Ann and I have cerebal palsy with spastic quadriplegia, I also have a contagious laugh that will have everyone laughing with me, and a smile that will brighten most days. While some of my friends are running around the mall, having slumber parties, and exploring the neighborhood, I can usually be found at home or out with my parents, relatives and caretakers who support my daily needs and me. I enjoy many sports including beach volleyball, hockey...
Spooky Duke: Saturday October 28, 2017 Stanley Gordon West says. "Smile and the world smiles with you!" I am Caleb and I have cerebral palsy with spastic quadriplegia and a sense of humor that makes everyone smile. Whiles my peers are going to college and working, I am dependent on my family and caregivers to provide support and day-to-day needs. Just like many of you, I love golf, basketball, football, racing, and just any sport! I love music, to ride in elevators, and travel. I like to travel...
14 Must have Life Skills for Teens Adapted from the article 14 Must-have Life Skills for Teens: Don't let your child leave for college without mastering these life skills! By Connie Matthiessen at Applying Life Skills with Caleb Recently, my supervisor asked how we could apply this article to our children with special needs. How do we work on helping our children to do what they can do without automatically assuming that they cannot? What could they do and how can we...
Download a previously made Reminder or Blank You Matter Sheet below!
Hello my name is Catherine Huete.   I wanted to share my story of how I got here with everyone. I remember when I first started dancing at a studio that was when I was around age six but remembering why is another story. All I knew at the time was when my parents played music I would always dance around the house without any real direction but I was often shy in dancing in front of people which hasn’t changed too much however, after having some lessons I became more confident in...


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